Friday, 16 October 2015

More blood work problems

I hope everyone had a great thanksgiving with family and good food!

I know I've been slacking in the blogging, I keep starting posts and then not knowing where to go with them. I haven't had much focus this week. The past week has been okay, my energy is back up a bit, enough that I've gone skating and to yoga, but I've also been napping a lot which isn't a good sign.

My hemoglobin levels are back down a bit from after the transfusion, thankfully I haven't been dizzy, but I'm wondering if that's why I've been a bit tired and just unmotivated overall. I wouldn't be surprised if I need another transfusion in the next week.

My lack of energy may also just be a mind game as I found out that my cytomegalovirus (CMV) levels are up which means that I get to start a new medication to treat me. CMV is quite common in the general population and my levels have been creeping up slowly. It finally reached the critical number where it they're ready to start actually treating it. The pharmacy didn't have any of the medication in stock as it's expensive so I won't actually be starting anything until Tuesday.

I'm really tired of all the complications lately. For some reason I though that by this point, I would be finished with all the complications and would be in peak physical condition. I figured I would get an infection once in awhile but didn't expect this continuous onslaught of problems. It's a bummer.

I'm trying really hard not to complain about the problems because I know it's just an infection which is better than rejection and the guilty part of me screams that I need to be thankful to just be alive.  And I am, it's just weary to have my lung function still down, the daily chats with my dietitian about my blood sugars, bi-weekly calls from Halifax about my blood work, and constant emails from Toronto about adjusting medication. I hope going to a haunted house this weekend will make me forget all my problems. It'll be scared out of me!

1 comment:

LittleM said...

I don't think you're being unreasonable. I hope you know, or will know someone who had a hectic first year and then smoothed out.